Medical history brochure

When Riley came home from the NICU, we came home with a very long list of doctors, 8 diagnosis, and 7 surgery dates to keep track of.  I was not sure how I was going to keep it all straight. We went for a follow up with Riley's pulmonologist and we were talking about trying to keep everything straight.  The doctor mentioned that one of her other patient's mom had created a brochure that they updated as needed. 

I thought that this was a brilliant idea so I went home and jumped on word template and found a trifold brochure.  I added pictures of Riley, all of her doctor' names and phone numbers, a brief history of her, all her diagnosis, surgeries (including dates), medication, pulled information from the Chromosome 18 website about Tetrasomy 18p.  I pulled this information most people don't know about Tetrasomy 18p.  Here is a copy of the template for the trifold brochure with information about Tetrasomy 18p.

As Riley got old and her history got longer, we got more doctors, added more services, and surgeries.  And the trifold brochure was not big enough for us any more.  So I went back in word template and end up finding a Christmas newsletter template that I convert into a 3 page brochure.  This allowed me to add milestones Riley had meet, a longer history, more details about her oxygen requirements, vision, hearing, and sleep study results.  Here is the link for the 3 page brochure with information about Tetrasomy 18p.

All of Riley's doctors love this brochure.  I update it as need.  I add new pictures.  It is great when we meet with a new doctor since her chart is so huge they can quickly look over the brochure and get a better idea about her.  It also has the link for the Chromosome 18 website so they can educate themselves about her too.  It has come in handy in an emergency too.  When you are panicked it hard to remember the last surgery or if her kidney reflux is on the left or right side.  This way you can just hand a copy to the paramedics or ER doctor.

I keep two or three in Riley's diaper bag. I also gave a copy to Riley's teacher when she started school.

This brochure is great for kids with lots of medical needs.  It is also great for when you are taking care of parent and there is more than one person handling the care.  It is an easy way to keep everyone on the same page.